Developmental Disabilities Planning Council

About Councils
About Councils
Learn About DD Councils
The Developmental Disabilities Assistance and Bill of Rights Act of 2000 (DD Act) is the result of many amendments to federal disability legislation dating back to 1963.

The purpose of the DD Act, as described in the current law, is to “assure that individuals with developmental disabilities and their families participate in the design of and have access to needed community services, individualized supports, and other forms of assistance that promote self-determination, independence, productivity, and integration and inclusion in all facets of community life...”


DD Councils

There is one State Council on Developmental Disabilities (DD Councils) for each U.S. state and terrority. The DD Act created State Councils on Developmental Disabilities as one of three mandated programs in each U.S. State and Territory; these programs include:

  • Councils on Developmental Disabilities
  • State Protection & Adovacy Designee
  • Centers for Excellence in Developmental Disabilities (UCEDD's)
Each of these programs is funded by the Federal Administration on Intellectual and Developmental Disabilities (AIDD).


Funding

Each DD Council is funded by the Federal Administration on Intellectual and Developmental Disabilities (AIDD). Funding levels are calculated based upon a state's need and population.

The New York State Developmental Disabilities Planning Council recieves about $4.1 millon per year.


State Plans

DD Councils develop five-year State Plans which must be approved by (AIDD). All Council activities must fall within the objectives of each state's respective State Plan.

The State Plan is a roadmap which tells AIDD what the Council will do in return for its funding. Councils may amend their state plans once per year with AIDD approval.


State Designation of DD Councils

Each state & territory designates one organization to function as that State’s Council on Developmental Disabilities. At the state/territory’s discretion, Councils operate as either State Agencies or as not-for-profit organizations. The NYSDDPC is New York State’s designated Council on Developmental Disabilities.


Council Composition

The Council is made up of approximately 45 Governor-appointed volunteers. The DD Act requires that more than 60% of these volunteers be individuals with developmental disabilities or family members of a person with a developmental disability. In addition to Consumer Members, there are four additional categories of membership:

  • State Agency Representatives
  • Representatives from University Centers of Excellence in DD (UCEDD's)
  • Representatives from the State Protection and Advocacy entity
  • Representatives from certain non-government service-providers

This diversity of membership ensures that that there is input from individuals representing many different skills and life experiences.


Council Member Duties

The duties of a Council Member include, but are not limited to:

  • Attend Full-Council and Committee Meetings
  • Participate in discussions and presentations
  • Participate in development of projects and initiatives
  • Review and vote on all DDPC funding motions
  • Review and approve DDPC State Plans
  • Serve on DDPC Committees and Sub-Committees